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Caregiver education and Pharma should always go hand-in-hand: Here’s why!

Caregivers represent an integral part of patient care, yet their vital role is easily overlooked, and they often lack the informational support needed to provide optimal care for patients. For National Caregiver Month (November), Prime Patient explores how pharmaceutical companies can become “caregiver champions” by recognising the essential nature of carers’ roles and providing much needed educational support services (1). 

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Prime GlobalCaregiver education and Pharma should always go hand-in-hand: Here’s why!
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Breast cancer treatment: decision-making through a health literacy lens

In recognition of both Health Literacy Month and Breast Cancer Awareness Month, we’re looking at the unmet treatment education needs of people living with breast cancer who experience low health literacy.

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Prime GlobalBreast cancer treatment: decision-making through a health literacy lens
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Patient-reported outcomes in metastatic breast cancer: delivering multistakeholder value through patient centricity

October is World Breast Cancer Awareness Month, and 13 October is Metastatic Breast Cancer Awareness Day. Let’s look at how the views of people living with metastatic breast cancer provide a vital, underestimated component of assessing the benefits of novel treatments. 

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Prime GlobalPatient-reported outcomes in metastatic breast cancer: delivering multistakeholder value through patient centricity
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Dementia and patient engagement: not as incompatible as you might think

An estimated 57.4 million people live with dementia worldwide, (1) and unfortunately, clinical trials for dementia treatments have resulted in few pharmacotherapies – none of them curative. (2) (3) (4) For World Alzheimer’s Day, Prime Patient explore how Pharma can collaborate with people living with dementia to optimise the industry’s dementia research and patient community support.

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Prime GlobalDementia and patient engagement: not as incompatible as you might think
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Disability inclusion in clinical trials and equity in outcomes

Many agree that disability inclusion in clinical trials is a worthy pursuit, but the historical significance and future impact of pursuing this goal is relatively unexplored. Here, we peel back the layers of this vital mission.

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Prime GlobalDisability inclusion in clinical trials and equity in outcomes
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Not just a buzzword: how Pharma and advocacy leaders are effecting meaningful patient centricity

On May 24th, the Prime Patient team was fortunate to have a spot at 2022’s Patient Centricity and Engagement Conference, hosted in London, England. With a veritable smorgasbord of topics up for discussion, we were spoiled for choice! Here we summarise some highlights from the day, kicking off with tips on strengthening patient advocacy collaboration. 

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Prime GlobalNot just a buzzword: how Pharma and advocacy leaders are effecting meaningful patient centricity
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Haemophilia awareness: building trusted relationships between patients and industry

Haemophilia is a lifelong genetic disorder characterised by excessive bleeding.(1) Despite the existence of treatments for haemophilia, the condition continues to have major impacts on quality of life, for example in the areas of pain (acute and chronic), joint mobility, and physical function.(1) To mark World Haemophilia Day on 17 April, Prime Patient partnered with sister agency HCD Economics, a consultancy specialising in haemophilia patient research, and haemophilia advocate Laurence Woollard to better understand the existing relationship between patients and industry and how meaningful improvements can be made to the lives of people living with haemophilia (PwH).

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Prime GlobalHaemophilia awareness: building trusted relationships between patients and industry
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Patient engagement in rare mutation cancers

Patient advocacy and engagement are important no matter the disease area, whether it’s a common condition or one that few have heard of. Following the recent celebration of Rare Disease Day, let’s take a closer look at patient engagement in rare mutation cancers. 

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Prime GlobalPatient engagement in rare mutation cancers
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Amplifying the Patient Voice in Rare Diseases

Medical publishing is evolving beyond plain language summaries to provide insightful, patient-centred resources to change the course of pharmaceutical research for the better. For patients with rare diseases especially, this could be just what the doctor ordered, writes Olivia Kersey, Patient Engagement Strategist with Prime Patient.

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Prime GlobalAmplifying the Patient Voice in Rare Diseases
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Rare reflections: has the pandemic helped or hindered patient engagement and research for rare diseases?

Emma Sutcliffe, SVP Patient Insights and Solutions, Prime Patient shares her reflections about whether the pandemic has helped or hindered patient engagement and research for rare diseases.

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Prime GlobalRare reflections: has the pandemic helped or hindered patient engagement and research for rare diseases?
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How to make 2022 the best year yet for patient engagement

Olivia Kersey, Patient Engagement Strategist, outlines what we can learn from 2021 to optimise patient engagement strategy and implementation in 2022.

While there would be no such thing as the pharmaceutical industry without patients, it’s only in recent years that collaboration with patients has started to enter the mainstream. While 2021 was a good year for patient engagement, 2022 can be both bigger and better.

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Prime GlobalHow to make 2022 the best year yet for patient engagement
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Patient authorship survey poster presented at ISMPP 2022

The Prime Patient team are proud to have had a poster accepted for presentation at the 2022 European meeting of ISMPP (International Society for Medical Publication Professionals), held virtually on 25-26 January. The poster, one of five accepted across Prime Global, presents the results of an internal survey that aimed to identify barriers and solutions to working with patient authors in medical publications.

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Prime GlobalPatient authorship survey poster presented at ISMPP 2022
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Prime Global acquires HCD Economics, creating an innovative evidence-generating, HEOR, value & communications group

Prime Global, a recognised global leader in medical communications and market access, has strengthened its Evidence, Access, and Patient Practice with the acquisition of HCD Economics, an academically aligned organisation focusing on health economics and outcomes research (HEOR) and real-world evidence (RWE). HCD will work closely with Prime Global’s highly experienced medical communications agencies and specialist consultancies, including market access consultancy, Prime Access, and patient engagement experts, Prime Patient, to deliver integrated evidence-led services.

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Prime GlobalPrime Global acquires HCD Economics, creating an innovative evidence-generating, HEOR, value & communications group
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Creating an effective patient engagement set of practices that is enduring and future-proof

What’s next for different disciplines of patient engagement in 2022? Find out more with Emma Sutcliffe, Jon Hoggard, Olivia K, and Ross Jackson. We are committed to providing Voice to Value practices that are egalitarian and enduring.

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Prime GlobalCreating an effective patient engagement set of practices that is enduring and future-proof
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Social media in patient engagement

It is hard to overstate the importance of social media in today’s healthcare ecosystem. Research has shown us that 74% of all internet users engage with social media, with a huge 80% of those people looking for health-related information or engaging with health-related topics.1  Social media has also become a place for people with chronic conditions to connect with each other, with research suggesting 40% of patients rely on social media to assess how others are dealing with and managing their condition.2

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Prime GlobalSocial media in patient engagement
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Event roundup: Pharma & Patient USA 2021

Promoted by Reuters as ‘The only destination for North American patient centricity leaders’, Pharma & Patient USA 2021 was a 3-day virtual event that took place in November 2021 with a mission to ‘Embed lived experience across the value chain to surpass centricity and embrace ground-breaking integration’. Prime Global’s VP Patient Recruitment Services, Ross Jackson, was in attendance and shares his insights from the event.

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Prime GlobalEvent roundup: Pharma & Patient USA 2021
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People living with HIV: 40 years of patient activism

This World AIDS Day, Emma Sutcliffe, SVP Patient Insights and Solutions, takes a look at how far we’ve come and how far we’ve yet to go. Patient activism is a key factor in this progression; Emma discusses her experiences over a near-three-decade career in medical communications and working with patient organisations and how central the patient really is.

 

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Prime GlobalPeople living with HIV: 40 years of patient activism
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How can we make lung cancer trials more patient-centric?

In recognition of Lung Cancer Awareness Month, Olivia Kersey, Patient Engagement Strategist, illustrates current opportunities for the pharmaceutical industry to better meet lung cancer patients’ needs across clinical trials and beyond.

 

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Prime GlobalHow can we make lung cancer trials more patient-centric?
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Your guide to patient authorship

Patient involvement in clinical trial design has evolved to provide opportunity for patients to be involved in medical publications. This evolution has allowed medical publications to gain invaluable patient perspectives on clinical research, by involving patients as authors in the development of plain language summaries and other, more traditional types of research publications1.

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Prime GlobalYour guide to patient authorship
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Dealing with Problematic Comments on Clinical Study Facebook Ads

Because so many people see Facebook ads, you can expect at least a few negative or other problematic comments. Even though you do not author such comments, viewers will associate them with your study. Ross Jackson, VP Patient Recruitment Services, discusses how to handle such comments.
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Prime GlobalDealing with Problematic Comments on Clinical Study Facebook Ads
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Patient Recruitment For Clinical Trials Using Facebook Advertising

Is Facebook the most effective means of reaching a wide audience when it comes to patient recruitment strategy? Ross Jackson, VP Patient Recruitment Services, shares his thoughts with The Huxley Morton podcast in a new video. He is, literally, the man who wrote the book on patient recruitment for clinical trials using Facebook ads! Listen to the podcast below.

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Prime GlobalPatient Recruitment For Clinical Trials Using Facebook Advertising